Hello Carmen how are you doing this evening. I read your post and am so sorry. I tried emailing you but it came back. My email address is lesthan@aol.com. First of all have you contacted info@scalyskin.org. The foundation can be a good source of info. Also many of the mothers with lamellar children will see this post and respond.They will be your best source of information because they have been in your footsteps.Also you need a good dermotologist who knows ichthyosis.Please email me and we can talk further. Take care Carmen. Bye for now. Les
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Les Avakian