I guess sharing a life story with ichthyosis is difficult. I cannot begin to tell you how blessed and cursed I am having this problem. I only know that I am a better, more caring and of course understanding person with ichthyosis. However I still get upset when my skin is dry or looks too dry. But I have gotten used to it. I am constantly puting on creams and oils to lubricate the skin. I guess I feel like the tin man (woman) in the Wizard of Oz. But at 28 I am finally understanding why I have this.

[This message has been edited by sofia (edited March 15, 2001).]