Hi Brianna, I am 33 and expecting my 4th child, third boy. My first son has XLI and I am worried about this baby. I did not have an amnio.

I should say though, that my son also has a fairly normal life. We live in an area with harsh winters and his skin does get flaky, especially on his scalp. I have also noticed that the scaling on the rest of his body seems to get worse every year. But, he is a happy 6 yr old. He jokes about his ichthyosis, rubbing his head and telling his friends that he is cool because he can make his head snow. We have just made sure that he knows that his skin is just a part of him and that he is great.

I would say that his XLI is more of a nuisance than anything else. I wish you the best of luck. Hopefully you have a great pediatrician and he/she can recommend a good dermatologist.