Well, my name is Brianna and I am 21 years old and pregnant with my second baby boy due june 5th. My older son,Stephen 2 and a half, does not have XLI,but durring this pregnancy I found out through an amnio that my unborn child will have XLI. I was also tested to see if I carried the disorder,because NO ONE in my family mom or dad has had any problems reguarding skin. I guess I am just the lucky winner of this disorder in my family. I feel as if it is my fault....I feel hopless....and lost. I am very scared. I never has any problems with my health or the health of my family members so I don't know how to deal with this. Is there any chances of the amnio being wrong? Can my son come out healthy without XLI? Has that happened to anyone? I guess thats my first major question. I am still fighting the facts that my son will have a genetic disorder does anyone have any advice on how to cope with this?
thanks
Brianna