I was just cruising through the Oprah site (www.oprah.com
) and it looks like they are preparing for a show about skin.
Visit this link and fill out the form...let's see if we can't get a feature about Ichthyosis!!!!https://www.oprah.com/plugger/templates/BeOnTheShow.jhtml?action=respond&plugId=250500001
(Make sure you list an age of at least 13 years old...for Ema, age 2, I listed myself and then told her story).
Craig and Sarah Hodgkinson (aka Dad and Mom to Matt and Ema)
Ema has been diagnosed with Congenital Ichtyosiform Erythroderma (CIE)