Our family would like to say thanks for all the helpful hints and all the support during the convention. We've come such a long way since I first googled ichthyosis and found the FIRST website. We were so lucky to be able to attend the conference so early in Baby T's life. Look forward to learning and growing with everyone. I'm sure I will have many issues and questions to post. Can't believe the overwhelming comfort I have knowing I'm not alone anymore. Here are some pictures of us. Baby T was born collodion on hands and feet only. Born 31 weeks weighing 4 lbs 3.1 oz. Not sure of diagnosis but thinking either li or cie. Thanks again.
Cara Griffith and Teofilo Tundidor III (son 3 with nb-cie)
Ft. Walton Beach, FL