Jennifer thank you, I will look for the group on Facebook.
Shannon, yes, I am a parent. My son, Omri, is now 7 weeks old and has HI.
Our biggest difficulties at the moment are with feeding him. We were given a special baby food by the doctors that is very high in calories. I'm not sure if it's related but Omri has trouble eating enough, and seems to have terrible pain from gas. He screams a lot and it seems to be related to digestion. When he eats he eats until he starts crying.

Shannon did your daughter have ectropion when she was born? Omri does and it doesn't seem to be improving. The eye doctor says he will not have eyelids really. So how do they close their eyes?