Our affected daughter (CIE) is now 6. As background, she was adopted at a year from an orphanage overseas. For the entire time we have had her, she has completely overreacted to even minor injuries. It has gotten so bad that I no longer even react when I hear her screaming and wailing -- her reaction is the same for a simple scratch as that for a major injury. Before we seek professional guidance on this as an emotional issue, we wanted to see if it was skin related. I do know that children with ichthyosis have more nerve endings than "normal" skin, and that they tend to be more sensitive to temperature of bath water, etc. Is anyone else experiencing this with their affected child?
6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.