Hi,
My daughter (just turned 2) has EHK, neither of our families have any skin issues and so we have been on a very steep learning curve the past 2 years.

I am now trying to gather as much information as I can to see what else we can do to try and help her. And also try and find other families in Australia as I would love to meet others and I think this will important for my daughter as she gets older.

Thanks