I'm a new parent to a daughter born with lamellar ichthyosis in March 2010. I'm hoping to meet other parents with infected children. I live in Eureka, California. We are five hours north of San Francisco on the coast. If anyone is interested in sharing or giving advice, please contact me or leave your contact information.
Thanks,
Suzanne

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My daughter was diagnosed with lamellar ichthyosis and we would appreciate any information that we can get.