Several of us have put together a guide to answer many of the questions you may have as a first-time caregiver to a child with Ichthyosis. Feel free to print a copy or bookmark the page for quick reference.

Thank you to all of the parents and adults with Ichthyosis who helped put this guide together. Please email me with corrections or additions and we'll continue to revise this guide to keep it current. Thanks so much for all your hard work!

Because the file is large, I had to create a separate web page to load it. Please follow this link to download the guide:

Guide for New Parents and Caregivers
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6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.