This is all extremely overwhelming but this board has been my savior through all of this. PLEASE do not hesitate to reach out to me or anyone else. There are lots of pics of my Kallie on my facebook, Kati Hartselle Nelson if you want to add me there if you are on facebook or I can email some to you or you check around here, I have posted some here too! My email is
Kati, Mom to Kennedy Jane (March 2007 -- unaffected) and Kallie (May 2009 -- collodian layer and no diagnoses yet)