Thank you, Les. Scalyskin.org was the first website that I found on Monday after we received Annalie's diagnosis. It has been incredibly helpful and informative! It has definitely eased my mind about what we're dealing with, and I am confident that we'll be able to give Annalie the best care possible.
Mom to Annalie born 7/17/09 (Mild Lamellar) & Hadley born 3/20/06