Welcome to our ichthyosis family and happy you found our site. We have an ichthyosis foundation called FIRST (Foundation for Ichthyosis and Related Skin Types) and our website is: www.scalyskin.org.
FIRST can provide you with very useful information on ichthyosis. You can contact Jean Pickford or Moureen Wenik at: firstname.lastname@example.org or call (215)619-0670. I hope to see more of your posts. Take care.