Thank you so much for the encouragement! Everyone is always so kind and extremely helpful. I feel a little embarrassed that I get overwhelmed and worry so much. I really feel so blessed just to have Kenny, but my heart just breaks to see him go through this.
Thank you so much for responding to me and helping me through this. I am so thankful to have people to talk to who understand:) I will definitely try calling the companies, good idea, thanks!
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My name is Candace. My son, kenny was born May 19, 2009 diagnosed with Lamellar Ichthyosis. My daughter Chloe was born June 4, 2011 unaffected.