THIS IS DONNA CLARE (GRACIE'S NANA). I KNOW EXACTLY WHAT YOU NEED TO DO. CALL SOMEONE AT F.I.R.S.T. AND ASK THEM TO SEND YOU SOME TRI-FOLD PHAMPLETS ON (UNDERSTANDING ICHTHYOSIS AND RELATED SKIN TYPES.) THIS TELLS ALL ABOUT ICHTHYOSIS, AND ON THE BACK IT GIVES YOU A PLACE TO SIGN AND FILL OUT A DOLLAR AMOUNT TO SEND IN A DONATION. I DID THIS WITH MY FAMILY BEFORE THE CONFERENCE IN ATLANTA. GOOD LUCK, DONNA DO