Hey everyone! I think this section of the forum's a fantastic idea! My mother has been a continuous support for me (she was at the conference as well), as my daughter was born with Netherton's.
I love the quilt idea! I had an idea for a fundraiser, and this seems to be the place to talk about it lol I was thinking, to petition different businesses - like hair salons, or tattoo shops (just thought of that one b/c I have a friend who owns one), and ask them to advertise that for maybe 2 hours on a Saturday, half of whatever they make would be donated to FIRST. Does that make any sense? I know Locks of Love does something similiar, except the salons donate hair instead of money.
Mom to Julia