I have an idea and I'm not too sure how everyone would feel abou this, but if you think it is dumb please tell me. What do you all think about a Quilt that has a picture of all of the kids that have Ichthyosis that are on this BB. Hang it up at the next conference and have it as a raffle(or even an auction) with the proceeds going to first. Or soemthing like that. All of could pitch in monies for what it would cost of material etc to have done?
Please if this sounds real dumb or crazy let me know.