I am new to this website but already seem right at home. I am 34 and am slowly starting to get worse!! In my late 'teans I started going red whenever I got ill (just like a sunburn) and then the skin cracked and pealed (again like a sunburn). However, recently (the last couple of years...) the skin rashes have been getting worse and the result worse (hence the name snowstorm!). Anyone else get/got this problem? My doctor thinks this is great as he can study me but so far is a little bit out of his depth. Oh yes, my brother is also ICH and started going red too. Is this normal or just strange?