It's been awhile since I've been on but I just found out what type of Icthyosis my brother has. He has EHK and needs support. I am going to try to give him the information about FIRST and from there, I hope he calls and contacts them.
I just want him to be surrounded by people who understand what he's going through. He's alone right now (even though his two brothers live in the same apartment). They have separate lives, dating, having fun, while William, my brother, spends most of his time at home, alone, watching tv. My hopes are that he lives life to the fullest. Any advice on how to get him to start this journey, would be warmly recieved and greatly appreciated.