Hi folks, I am desparate for some feedback. I have Lamellar Icthyosis. I have been having some really bad problems with my lower right leg. After going through a bunch of tests, I was sent to a neurologist who determined that I have nerve damage in the cutaneous layer (if my spelling is wrong, forgive me) of my skin on my lower right leg. Has ANYONE else here ever had this happen to them (nerve damage in the cutaneous layer of skin)? We do not know if it is at all related to my ichthyosis but would like to find out. He's searching for information but doesn't strike me as a computer literate fellow, so I thought I'd ask around online. Thus far my search has turned up zilch!
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I am female, and was born in 1972 with Lamellar Ichthyosis.