Like Pauline I am also the first in my family to have EHK. I have 3 older sisters that do not have it. My children also will have a 50/50 chance of having it. I know a woman with EHK who has 4 children, only one of her kids had EHK passed on to them. I met another woman who didn't have EHK, had two uneffected kids, then had one child with EHK, then had another that was uneffected. I'd say the chances of your next baby having EHK are extremely rare if not impossible. You might want to have your genes tested but i think it will be a waste of time and money.