Hello,I am sure there are people out there who will address the genetics of the issue. I just wanted to tell you, I have two children. My oldest does not have EHK and my youngest does. As far as we know, no one else in the family is affected. We have not had any genetic testing done at this time because we weren't planning on having any other children anyway. I imagine some day, Evan will want to know more and we will do what needs done then.