How did your doctor diagnose BSI?
Your description sounds a lot like my son Trevor's (2 years old) presentation of LI. He is mostly affected on his abdomen, diaper area, neck, armpits, and scalp (the most problematic area). Like Susan's son, the skin on Trevor's face and the rest of his body is soft, "normal" skin.
Genetic testing confirmed that Trevor has LI, but his derm is puzzled about why he's only partially affected by scales. He could only guess at the possible reason (something about different gene mutations inherited from my husband and myself).
Proud Mama of:
Trevor / Jan. 2005 / Lamellar
Spencer / Nov. 2007 / Lamellar