I'm 26 years old and I've got lamellar ichthyosis. Recently they've found out I've got Bathing Suit Ichthyosis (BSI), a peculiar phenotype of lamellar ichthyosis.
Doctors coudn't give me more information than this, because I'm the only person with BSI in Belgium.
Are there other people with BSI who can give me more information?
Thanks, Eline