I have EHK, but I thought I would respond anyhow [img]http://www.ichthyosis.com/ubb/smile.gif[/img]
I also need sunglasses and feel like I am squinting even with them on, and I feel like the light really does bother me. I have really bad eyes anyway, and have been wearing bi-focals since I was 16, so I don't know if that's part of it or not.
My optometrist did say I had some light sensitivity, but he didn't seem to think it was odd or any big deal, and I didn't ask a lot of questions.
Dunno if the two are related, but I would be curious to hear if anyone else is this way too.