I have a 3.5 year old daughter who has an undiagnosed skin condition; it's probably CIE but the dermatologist has bandied harlequin and netherton's too.

The dermatologist has just suggested putting her on soriatane but having read about the bone spurs etc with accutane on this bulletin board, I'm now really concerned about giving her a related drug at such a young age. Plus at the moment she is confident in herself and making good progress at nursery; I don't want her to start getting hung up about her appearance to the public already.

Does anyone have any advice or comments that would help us?