I live in Nebraska and my daughter is 9 mos. and she has ichthyosis.They are doing genetic testing and have not yet found out what kind she has.They believe she has C.I.E our family does not have a history of Ichthyosis and I have 2 other children that don't show any signs of it. In Nebraska people don't know much about it. So if any body has any information for me it would be greatly appreciated..
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Lacy,Elizas mom possible C.I.E. 4-9-07
Brady 9-10-01
Hunter 7-11-05