Hello Wbreen,
Just wanted to welcome you. I have a son who is 8 almost 9 who has nethertons syndrome. WE have been through alot but I can tell you it gets so much better as they get older. Braedens skin has improved sooo much. On his really good days his skin looks totally.
He is a normal healthy Boy, he is very inteligent and started playing Basketball this year. He is small for his age but that has never held him back. His nickname in the neighborhood is Big "B" .If you should ever have any questions please feel free to e-mail me at anytime. Tammy