Ok, here is the thing. I have this blog that, um, is kind of popular, and reaches a pretty wide audience. I've been on hiatus for a while, and am about to start writing again. So far, I haven't mentioned our daughter's ichthyosis, mainly out of respect for all of you. If I link to FIRST and this site, and start discussing what I go through with our daughter, then traffic to this forum will increase. That means total strangers with no connection to Ichthyosis lurking around, reading our forum, looking at pictures of our kids. It also means raising awareness of ichthyosis and presenting it in a positive light.
What are your thoughts on this?
4 year old daughter with CIE