When my 13 year old son Evan with EHK was a baby, I was pretty much the only one who could hold him. He would cry with anyone else and still would cry with me. I always felt it was ichthysosis related. They sent him home from the hosptal with morphine. There were times I would just put him in his bed, close his door and let him cry. I just couldn't do anything else for him. For what it's worth, it did get better. In fact, now I don't know how he goes through some of the scrapes he gets without saying it hurts. By the time we were into the second year, he cried much less.
Deidra
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Dee