Hello Lisa
I am glad you posted and many of the people here can give you very good advice. First of all, I would contact our ichthyosis foundation called FIRST(Foundation for Ichthyosis and Related Skin Types) at info@scalyskin.org. or (215)631-1411. Jean Pickford or Maureen Tierney can send you information on X linked and put you in touch with members of our ichthyosis support network.Our foundation website is www.scalyskin.org.With X linked, we lack the steroid sulphatase enzyme.In some cases there is an inhibition of progression of labor so inform your doctor of this possibility.Maybe Jean or Maureen can refer you to a doctor in your area experienced with ichthyosis.If I am not mistaken, Dr. Bari Cunningham(FIRST Med. Adv. Board) is down in the San Diego area.Lisa if you would like to email me, I am Les Avakian,X linked ich, at lesthan@aol.com.Take care and by for now.
Sincerely,
Les Avakian
_________________________
Les Avakian