Hi I found this site while surfing one day trying to find out more information on the type of ichthyosis that my 17 month old daughter has been diagnosed with (tay syndrome(a.k.a. trichothiodystrophy; type e' and probably many more that I don't know about). She has the flaky skin on her stomach, back and sides. other wise she seemes not to be affected to much. What I would really like is if anyone else out there has this, knows about this or where else I can get more info? My husband and I had never heard of this before Brianna's birthand are clueless as far as what to expect or do for her. Any info would be appreciated greatly. Thanks in advance
Sharon