My name is Karen Carey and my mom, myself and my daughter all have EHK. As you know
the scalp thing can be a HUGE problem. Cindie had it so bad that it literally glued her hair to her scalp as a baby. Well, as a child growing up with this myself my Grandmother would clean my head twice a week and it always felt like she was scalping me. It was horrible and by the time she'd get done with me, i'd have a huge headache but it had to be done. Then when my own daughter would get bad, it was the same thing for her. Finally, a doctor told me about P&S Liquid and P&S Shampoo. Both of these are medicated and work wonderfully.
You simply apply it to the scalp at night and let it soak over night. It smells pretty bad, but the next morning you wash it with the shampoo and after about three nights of this the skin is practically able to be washed out of the scalp. It was soooo wonderful. Finally i didn't have to hurt my daughter to get her scalp cleaned out. Anyway, hope it can help you as well as it did us.
Karen L. Sawyer