I am the proud mother of a 3 1/2 year old named Marc. He, too, was born a collodian baby. When he was born, the doctors told me that once the collodian membrane came off, my son's skin would either be "normal" or he would have one of two kinds of ichthyosis: lamellar or CIE. Marc has lamellar, which they tell me is one of the more severe types.
Every child is different and creams that work for one, may not work for others. Another thing I learned is that sometimes a cream will not do anything for Marc's skin after some time. For whatever reason, the cream is no longer effective. It could be the weather or just the cycle his skin is taking-who knows!
I have learned that I get the best advice from other moms and dads who are dealing with this condition everyday.
When Marc was born, he spent 15 days in the NICU. The only cream they used on him was Aquaphor. Believe it or not, it is pretty much what we still use today. Aquaphor will not harm your baby. It is similar to vaseline, and it helps to retain the moisture in your baby's skin. I gave Marc a bath 3 times a day for the first six months of his life. After each bath, I rubbed him down with Aquaphor. As he got older, we tried aquaglycolic lotion, a compound of eucerin mixed with 10% urea, and Problem Dry Skin from Neostrata (PDS), among others. We had the most success with the Aquaphor and the PDS. Presently, we are using Theraplex on his face with great results.
Basically, you have to take one day at a time and test certain creams to see what their effects are.
It is important to try to determine the type of ichthyosis your child has so you know what course of action to take.
I could go on forever about my son and how I treat his skin. I think he looks awesome and I truly believe it is because we take such good care of his skin.
I don't want to take up much more room. If you want to talk further, please e-mail me at DenmarcNY@aol.com. You should also join FIRST (Foundation for Ichthyosis and Related Skin Types) if you haven't already done so. They are a great group of people and have a wonderful support group where you could talk to other moms who are going through what you are.
Take care. Please feel free to e-mail me.