Hello Sarah, welcome to the bulletin board moms section.My name is Les Avakian and have X linked like your son.My mother tells me when I was young, she used nivea, aquaphor, and eucerin creams, but that was many years ago.I have asked other moms what they use for the itching, and some say Sarna cream. You must remember, some creams work better for some and not as well for others.We lack the steroid sulphatase enzyme.We dont exfoliate (shed dead skin) at a normal rate.The ichthyosis foundation (FIRST-Foundation for Ichthyosis and Related Skin Types) has set up an Ichthyosis Support Network.The telephone number for the foundation is 215-631-1411. They will give you more information about X linked and will put you in touch with others.If you have the time, we meet on Wednesdays at 6:00 P.M. in the ichthyosis chat room and hope you can attend. Bye for now.
[This message has been edited by Laura Phillips (edited October 13, 2000).]