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#9543 - 10/07/00 12:05 AM ichthyosis bullosa
Janice Offline
Junior Member

Registered: 09/27/00
Posts: 2
Loc: Chatham, Ontario, Canada
Hi
My son too was born with ichthyosis. I have it as well. We are getting along pretty good. I am from Canada and the only web sites on this condition are mainly from the United States. I was just at my dermatologist the other day and I asked her if there would ever be a cure for this. She replied that there are researches working on this condition in the United States. I was very happy to hear that, it gives us some hope. I am glad to have support from others who are in the same boat as well.
Any replies welcome. It's just nice to have someone to talk to and compare stories.

Janice

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#9544 - 11/08/00 12:33 AM Re: ichthyosis bullosa
paula Offline
Member

Registered: 08/16/00
Posts: 20
Loc: bellevue,ne 68005
hi my name is Paula and I have a son with Netherton sydrome Ichthyosis. I am glad to hear that they are doing research. I hope and pray that they can find a cure. If you want to email me I would love it. mom4mikeusa@home.com
Paula


[Note: This message has been edited by marcsmom]
_________________________
Paula A. Wetterlund

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#9545 - 11/11/00 12:53 AM Re: ichthyosis bullosa
marcsmom_dup1 Offline

Member

Registered: 08/12/00
Posts: 107
Loc: Wantagh, NY USA
Hi Janice,

Welcome to the Mom's Group! My son, Marc is 3 1/2 years old and he was born with lamellar ichthyosis. He is your typical boy-into everything!!!!

I would love to hear more about your son.

Hope to hear from you soon!

Denise aka marcsmom

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