Hello everyone and welcome to the Moms Group! Don't let the title fool you...Dad's and other caregiver's are welcome, too! [img]http://www.ichthyosis.com/ubb/smile.gif[/img]
I am here to hopefully help out all of you who have questions about dealing with a child with lamellar ichthyosis. My son Marc is 3 1/2 years old now and he was born a collodian baby. I had never even heard of lamellar ichthyosis until then and now I could talk your ear off about it!
I want everyone here to feel that this is the place where you can come to and ask any question about dealing with lamellar and your child and this is also a good place to vent your anger and frustations about ichthyosis, too.
I hope to hear from many of you soon!
Take care,
Denise (marcsmom)