Regardless of how you feel about Oprah, or any other talk show host for that matter, it would be WONDERFUL to raise awareness about ichthyosis.
If Oprah talked about this rare condition on her show, can you imagine how the telephone at the Foundation's headquarters would be ringing off of the hook!?! We NEED a big name celebrity to "adopt" ichthyosis and put it out there in the public's eye.
I have joked about this before, but a big part of me is serious.....I have hoped-and I know you shouldn't wish this-that a celebrity would give birth to a child with ichthyosis. Why, do you ask? It is simple....celebrities have the "clout" to make things happen. Awareness would be raised and then perhaps these huge pharmaceutical companies would latch on and provide money/funding/grants for research, which could possibly lead to a cure.
So, no matter what your thoughts are about Oprah or any other "big name" for that matter, some sort of exposure would help us out in the long run.
Oh, yeah....Jean gave me an update....she wrote to Oprah and included some photos and she is having her letter hand delivered to the studios by a member who lives in Chicago. Keep your fingers crossed!! [img]http://www.ichthyosis.com/ubb/smile.gif