Dear Babygirlbeach, I hope you are feeling a bit better now. I know how you feel - as parents of children with any condition, we too have a special need. I tell my son that sometimes when I am fussing and he understands it. My son is 13 and also copes unbelievably well with his 'dry skin'. It hasn't been easy but it has been far easier than I thought it would be as I sat with him in special care on the day of his birth and imagined his entire life and how difficult it was going to be. I am a teacher and I see children being nasty to each other - it is part of growing up and we need to accept it as that. My son has been called names from time to time but it does not affect him. He shrugs it off, but it is more difficult for us as parents to do that because we imagine our children's pain and it is usually far worse than reality. When my son was about 3 we were watching a cartoon together - there was a dragon in acage and it was crying. I said to my son something like - oh poor dragon. My son said 'why are you sad, your'e not that dragon'. That has really stayed with me and if I ever had any advice to give a parent of a child with any serious condition I would say this: remember that it is your child that has the condition and not you.
I also comfort myself with the fact that I have always done the best I can. Take care!