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#5085 - 07/13/06 03:06 PM ASTHMA
Anonymous
Unregistered


VANESSA IS NOW 17 MONTHS OLD AND HAS BEEN IN THE HOSPITAL 4 TIMES WITH WHAT THEY SAID WAS PHEUMONIA. HER DR CALLED IN A LUNG SPEACIALIST AND WE DETERMINED IT IS ASTHMA. IT IS POSSIBLE SHE HAS IT FROM ME . I HAD IT WHEN I WAS YOUNGER BUT THEY THINK ITS MORE BECAUSE OF THE ICHTYOSIS. ASTHMA, ECZAMA AND ICHTYOSIS ARE ALL TO B RELATED TO EACH OTHER. IS ANYONE EXPERIANCING SIMILAR ISSUES?

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#5086 - 07/13/06 03:22 PM Re: ASTHMA
jds Offline
Member

Registered: 12/23/05
Posts: 432
Loc: Austin, Texas
My son hasn't been diagnosed with asthma, but I often wonder. His brother has asthma (not ichthyosis) and one of the symptoms (sp?) of an asthmatic flare up is coughing. Jared has been coughing off and on alot lately with no other symptoms. I am also curious to know if others experience the same thing.
Tammy
_________________________
Tammy (caregiver)
******************
toddler son
lamellar ichthyosis

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#5087 - 07/13/06 03:35 PM Re: ASTHMA
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
All my children were premature, I had my oldest who is 20yrs when I was 5 months pregnant and she has asthma, my 10 yr old was born at 7 months and has asthma, and our youngest who is 10 months old and has Ichthyosis also has asthma, which they found when he came down with RSV. He also was a preemie. We were told that Ashthma goes along with Ichthyosis. Basically they said if you have Ichthyosis you will have Asthma. But I am sure there are more experienced people on the boards in regards to this.
When he needs it we hook him up to the neubulizer and put a presription medicine in it called Xopenex(spelling?) and it works great.

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#5088 - 07/13/06 04:23 PM Re: ASTHMA
Les Avakian Offline


Member

Registered: 08/13/00
Posts: 680
Loc: Fresno, Calif. USA 93705
Hello Jamie, JDS, and Shandra
At our ichthyosis conference in Atlanta, Dr. Philip Fleckman touched on the relationship of ichthyosis vulgaris, asthma, and eczema. Doctors and researchers at the University of Dundee, University of Washington, and Copenhagen did extensive research in finding these characteristics. They also found a lessened amount of an enzyme called profilaggrin in ichthyosis vulgaris people.On this board, there is the website listed for this breakthrough study.When I find it, I will email it to you.
Thanks for your post.
Sincerely,
Les
_________________________
Les Avakian

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#5089 - 07/13/06 04:29 PM Re: ASTHMA
gryphon Offline
Member

Registered: 04/12/06
Posts: 298
Loc: Alberta, Canada
My answer is "yes" as anyone with IV and eczema in my family also has asthma. The eczema abated with adulthood while the asthma (aggravated by allergies ie.pollen) persisted through adulthood.

I however have moderate IV but have no history of either asthma or eczema. So the correlation is not absolute.

Based on what I've read, my layperson's understanding of the genetics is that the connection is between the filiggrin gene responsible for ich vulgaris and a predisposition for eczema/asthma.

Here's a news article on the gene discovery made in 2006.

http://www.irishhealth.com/?level=4&id=9181

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#5090 - 07/13/06 04:41 PM Re: ASTHMA
gryphon Offline
Member

Registered: 04/12/06
Posts: 298
Loc: Alberta, Canada
Sorry Les. Saw your post after I posted, and it turns out I rehashed much of what you said. [img]http://www.ichthyosis.com/ubb/smile.gif[/img]

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#5091 - 07/13/06 04:41 PM Re: ASTHMA
Les Avakian Offline


Member

Registered: 08/13/00
Posts: 680
Loc: Fresno, Calif. USA 93705
Thanks Gryphon
I was able to also find the article in the www.medicalnewstoday.com website, March 22 issue.I think with more research we are going to find many characteristics leading to explanations linking our ichthyosis problems.Take care and thanks again.
Sincerely,
Les
_________________________
Les Avakian

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#5092 - 07/13/06 05:36 PM Re: ASTHMA
Anonymous
Unregistered


THANKS FOR EVERYONES INPUT. VANESSA IS ALSO ON XOPENEX. HER ASTHMA ONLY FLARES UP WHEN SHE GETS A COLD. HER NOSE WILL RUN ,THEN WHEN IT DRYS UP THE COUGH BEGINS. WHEN THAT COUGH STARTS, I KNOW WE ARE IN FOR IT. SHE HAS BEEN IN THE HOSPITAL 4 TIMES. IS ANYONES THAT BAD?

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#5093 - 07/13/06 08:34 PM Re: ASTHMA
gryphon Offline
Member

Registered: 04/12/06
Posts: 298
Loc: Alberta, Canada
Jamie:

Just read one of your other posts and saw that Vanessa has one of the more severe ich's likely lamellar. The research I referred to earlier made a genetic connection specifically between *ich vulgaris*, the filaggrin gene, and asthma/eczema.

Nonetheless, the 'physical' cause of asthma and eczema is that the reduced *barrier function* or abnormal permeability of IV skin allows foreign substances or allergens to enter the body through the skin. My understanding is that both asthma and eczema are the histamine reactions to these foreign substances entering the body. Lamellar, and other ich's, also has reduced barrier function so irritants could also be entering via the skin.

Asthma in my family, is simply constricted airways resulting in wheezing and difficulty breathing with no connection to colds/coughs. But it can be severe enough to require quick intervention (ie. hospital if medication is not handy). It is corrected by either using Ventolin (sp?) or Flovent inhalers depending on the severity. When allergens (ie. pollen) can be anticipated, anti-histamines like Reactine usually prevent the asthma attacks.

Interestingly in my family's experience, more frequent bathing to wash allergens off the skin (ie. after gardening or mowing the lawn, if pollen is a cause) also works very well to prevent asthma attacks. Sure you have to 'lotion-up' again, but it's worth the hassle to avoid the asthma. Depending on whether Vanessa's asthma is the result of allergens, you may want to see this technique is of benefit, if and when you identify the causes of her asthma.

[This message has been edited by gryphon (edited July 13, 2006).]

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#5094 - 07/13/06 10:13 PM Re: ASTHMA
Anonymous
Unregistered


GRYPHONE, THANKS FOR THE INFO. I NOTICED YOU SAID FLOVENT. VANESSA GETS 4 PUFFS DAILY.

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