hi, i am new to this site. My name is Jennifer and my son has lamellar ichthyosis. just wanted to reply to these messages, i also tried to write to the dr.'s show and we got nothing!!!! the newest health show i would really try though is the dr. oz show he seems like such a nice guy.It would be great to cause attention to ichthyosis, people would be aware more of this rare condition! so maybe instead of (oh my was he burnt)it could be oh i think i saw a show on that once.
by the way i love this site and i already love you all.
we are a small community lets stick together