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#30263 - 01/20/16 03:30 PM Is this really a genetic disease? Healing!!!
stkacljm Offline
Member

Registered: 08/11/07
Posts: 23
Loc: Wisconsin Rapids, Wi, USA
I know we've all been told that this is genetic and there is nothing we can do to heal, but I do believe that I am experiencing healing after 43 years. I have changed much in my diet and would be happy to share for anyone who has questions, but the short of it is that I have begun to heal my body from the inside out and my skin is showing it. I have the baby soft kind of skin that I have never experienced before in my life in patches of my body that seem to be getting bigger each week. Lost my dad to cancer a little more than a year ago which started me on a journey of asking a lot of questions about our health and seeking TRUE answers, not just conventional. Please read! Answers are out there. Open your mind up to believing some things that most people reject without giving it a second thought. Food can be our medicine!!!
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Patricia

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#30267 - 01/28/16 01:10 PM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
stkacljm Offline
Member

Registered: 08/11/07
Posts: 23
Loc: Wisconsin Rapids, Wi, USA
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Patricia

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#30268 - 02/01/16 10:08 AM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
deepak Offline
Member

Registered: 08/19/08
Posts: 28
Thank you for the links !
Can you please share things that you did in nutshell ?

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#30269 - 02/02/16 04:41 PM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
stkacljm Offline
Member

Registered: 08/11/07
Posts: 23
Loc: Wisconsin Rapids, Wi, USA
As simple as I can get it, Yes! I'm so excited to!
1. All of 2015 - Cleaned up my diet to "real" foods.
2. March, 2015 - Began taking cod liver oil. (see my post under "alternative therapaies" http://forum.ichthyosis.com/ubbthreads.php?ubb=showflat&Number=30266#Post30266 )
3. September, 2015 - Began supplementing with iodine. Amounts are controversial, but it's pretty much accepted that all Americans are deficient. (http://www.globalhealingcenter.com/natural-health/free-iodine-webinar/) I also found Tmax's testimony, a member on this forum. (http://forum.ichthyosis.com/ubbthreads.php?ubb=showflat&Number=24644) I began with just 6.5 mg/day and worked my way up to about 20 but this caused a little bit of discomfort in my liver area. Reading taught me that iodine is a detoxifier.. (http://drsircus.com/medicine/iodine/iodine-and-detoxification) It is the liver's job to help filter those toxins out of our body. I found Robert's testimony in an archive posting on the internet. (http://onibasu.com/archives/am/14460.html) I began to wonder if we really could heal from ichthyosis. That led me to my next step.
4. October, 2015 - Supplementing with chlorella and cilantro oil, hoping to maybe detoxify any toxic metals from my body. Weird eyelid twitching came along with that every time I took the supplements.
5. December, 2015 Thought maybe I should work on cleaning up my liver as well. But reading taught me that before I cleaned my liver, I should first clean my colon. That led me to my psyllium and bentonite clay shakes. (http://www.drjomd.com/highways/detox/simple-colon-cleanse/) This caused some major muscle twitching, but the areas where my muscles were twitching are the areas that are clearing up.
After two weeks of gulping these shakes twice a day, I began to notice that the upper part of my back felt very soft. Since then, the insides of my arms, backs of my legs and upper part of my chest have begun to clear. Just this past week the clear skin has been spreading to my right shoulder. I keep waiting for this to reverse, but it only keeps spreading! I am so excited! (Rules say I cannot use multiple exclamation points, but if I could I would! =D) I learned that bentonite clay is a major detoxifier (http://draxe.com/bentonite-clay/), so I am sure it is pulling something out of my body that I've had since birth and does not belong there. Maybe received some of my mom's toxins, which would explain why our condition is passed down among families. Maybe it's not genetic after all. Maybe we're just passing on our toxins and toxic lifestyle.
6. Since the shakes, I can take the chlorella with no weird eyelid twitching and I have been able to gradually increase my iodine to about 50mg per day with no side effects. I still intend to do a liver cleanse, but cannot yet post on my experience with that. Here is an interesting page I found that talks about some specific symptoms of an unhealthy liver. http://www.ener-chi.com/how-can-i-tell-i-have-gallstones-in-my-liver/. I was surprised at how many apply to me. For anyone who tries to heal their body naturally, be aware that you may experience weird or uncomfortable symptoms before you see positive results. This is called a healing crisis. It is natural and temporary and should not discourage you, but you may want to slow down to reduce symptoms. (http://www.globalhealingcenter.com/natural-health/what-is-a-healing-crisis/)
This is my path but please do your own research and find the path that you need to take to heal. Read these links and then read some more. I am not prescribing any protocol. I am just letting you know what has worked for me. Put the nutrients in and get the toxins out. And here is yet another link that may be helpful to someone just getting started. http://www.drjomd.com/highways/ Hope this is helpful!


Edited by stkacljm (02/02/16 07:02 PM)
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Patricia

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#30275 - 05/07/16 09:58 AM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
stkacljm Offline
Member

Registered: 08/11/07
Posts: 23
Loc: Wisconsin Rapids, Wi, USA
I wanted to share an update for anyone who may be watching this post. I was disappointed to see my skin begin to reverse to its normal state beginning in March. But I had seen a glimmer of hope, so I was not going to quit trying. I suspected that our skin is an autoimmune disease, so I decided to eliminate some foods from my diet to see if that would change things, and certainly it did help. For a short time I took out all grains, most dairy (still had it in coffee and yogurt), and processed or refined sugars. I was excited to see my skin again begin to clear! So beginning May 1, I began an elimination diet called the GAPS diet. This book... http://www.amazon.com/Psychology-Syndrom...words=gaps+diet ..teaches about it and I would recommend the read to anyone who is going to take this seriously, but there is a lot of info on the web to learn the skeleton of it. Basically, you eliminate all the foods that your body could be reacting poorly to and, after beginning on a meat and veggie soup made with real broth (not boullion cubes!) fast, you begin to add foods in, one at a time. This allows the gut lining to heal and seal itself while you work at killing pathogenic bacteria in your gut and repopulating the positive bacteria that our bodies need to thrive. After a time period that will be different for everyone (6 months to 2 years is average) you really can eat anything you want in moderation. Of course it never would be healthy to return to the Standard American Diet. So after only a week on this diet, my progress on healthy skin has made leaps and bounds! More of my skin is clearing; the part that is not yet is at least not flaking at all, and I am holding the first suntan I've ever held in my life...its always peeled off before. I wish for everyone on this forum to know this, so please respond if this is helpful for you or if anyone else is willing to try this. I know it sounds very overwhelming at first, but after some adjustments, you will learn that there is so much nutritious, yummy food available that you really won't miss your old lifestyle much at all. I hope this is helpful to someone. God bless!
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Patricia

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#30441 - 08/19/16 02:20 PM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
Derydeartact Offline
Member

Registered: 08/17/16
Posts: 23
Loc: Los Angeles, CA
Thanks stkacljm, surely this is very helpful. A bit of more info would be even more appreciated!
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Hello everyone!

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#30452 - 08/31/16 12:30 AM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
stkacljm Offline
Member

Registered: 08/11/07
Posts: 23
Loc: Wisconsin Rapids, Wi, USA
Derydeartact, not sure what you're looking for. I can answer any specific questions about my journey as best as I am able. I, myself, am still learning though and certainly not qualified to prescribe any protocol for anyone. If you read the links above and check out the Natasha Campbell-McBride's book (https://www.amazon.com/Psychology-Syndro...hology+syndrome) it should help you get on a beginning path. I believe with all my heart that my skin issue, and probably most on this site, could be healed if we heal our insides, beginning with healing our leaky guts. This causes foods and toxins to get into our bodies through the intestinal walls, and our bodies have an inflammatory reaction on our skin from that. Others may have other issues such as arthritis or lupus, or even more minor skin issues like eczema or psoriasis.

If you would like to hear an update from me, I feel like its a bit of a roller coaster. Figuring this out through trial and error is not easy. For example, one of Natasha's first recommendations is to add eggs into the diet. Well, I was eating lots of eggs for about a week and a half when my skin began feeling and looking awful. Of course, it took another week after eliminating the eggs entirely for my skin to feel good again, but I got discouraged and started eating illegal foods again. Then I recently had to go on antibiotics which caused much of my clear, healed skin to regress. frown Not all though, and I am now starting over on my diet after a very inconsistent summer. The fun part is that within a week of being faithful again, my skin is so much smoother than otherwise, so it does not take long. Hopefully I will be really strict with myself and report back in a few months with really good news. smile Maybe by then my skin will be tolerating eggs!


Edited by stkacljm (08/31/16 12:38 AM)
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Patricia

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#30456 - 09/02/16 07:03 AM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
Derydeartact Offline
Member

Registered: 08/17/16
Posts: 23
Loc: Los Angeles, CA
do you think that dieting is the only thing that can keep it under control??
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Hello everyone!

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#30461 - 09/08/16 10:10 PM Re: Is this really a genetic disease? Healing!!! [Re: stkacljm]
stkacljm Offline
Member

Registered: 08/11/07
Posts: 23
Loc: Wisconsin Rapids, Wi, USA
I have, through this process, learned much better how to manage my skin in terms of reducing flaking, dryness, etc. and that is with a pretty high dose of cod liver oil each day. I posted about that here: http://forum.ichthyosis.com/ubbthreads.php?ubb=showflat&Number=30266#Post30266. In a nutshell, cod liver oil has large amounts of natural food-based vitamin A in it that is so very helpful for our skin. The synthetic form is found in the pharmaceuticals that are prescribed by our dermatologists. If I stay on top of my cod liver oil, I do not leave snowflakes everywhere I go, and I can wear that cute black sweater without the dandruff look. smile

My conviction, however, is that a very strict diet along with some optional but helpful supplements is the only thing that will aid in healing the digestive tract. After all, much of the reason that our guts are in such rough shape is due to our poor diets. If I am correct, then healing the digestive tract, in turn, will be reflected in my skin clearing up. My goal is not to keep my skin under control, but to completely heal. As I wrote earlier though, the dietary changes should only be temporary as long as I never go back to the terrible habits that once again destroy the lining of the gut.

As an update, I saw a homeopath last week and testing revealed some type of amoeba, a couple viruses, and three different strains of candida floating around in my body. Yikes! I am definitely going to get more strict with my diet. (Been doing my share of cheating throughout the summer.) She gave me some homeopathic remedies to try for a month. Hopefully I'll have some positive things to share soon!


Edited by stkacljm (09/08/16 10:11 PM)
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Patricia

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