It is about empowering your son, ensuring that he knows there isn't anything wrong with him as such and giving him strategies to deal with the ignorant of this world.
There are some great hints and tips on the UK's Ichthyosis Support Group Ichthyosis Support Group
website. If you follow the links you will find Change Faces, who do great work for those who have a visible difference.
If I can help further, please contact me at your convenience.