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#29029 - 10/21/13 02:30 PM I need help
Eva Ludwig Offline
New member

Registered: 10/21/13
Posts: 2
I apologize for opening a new thread, but I just don't know where to go anymore to get some help. I am from Germany and I am currently studying in the US to get my Master Degree. I have ichthyosis type CIE. I thought I brought enough lotion from Germany till I get back at Christmas and that it would be easy to get new lotion here, but I am starting to run low and nobody seems to know what they should give me as an alternative to my current lotion. I am starting to get desperate because I cannot bare to think about the worst case scenario of not having a lotion. I would not be able to leave the house which is not an option seeing as I teach and study at the same time.

Please, if anybody out there can tell me what they take to make their skin smoother, less dry and itchy, I will be eternally grateful.

My current lotion consist of the following ingredients (even though I doubt anybody here knows what the stuff is, my doctor certainly did not)

Urea pura 120g
Aqua dest 120g
Silicoderm F
Creme Bayer ad 1200.0g

Thank you again, any help would be appreciated!


Edited by Eva Ludwig (10/21/13 02:31 PM)

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#29031 - 10/22/13 06:37 AM Re: I need help [Re: Eva Ludwig]
Glori Offline

Member

Registered: 08/14/00
Posts: 499
Loc: Elk Rapids, Michigan
It might help to take your current product to a pharmacy and ask the pharmacist if there is an over-the-counter equivalent available.
Does your lotion have a brand or trade name?

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#29032 - 10/22/13 09:59 AM Re: I need help [Re: Glori]
Eva Ludwig Offline
New member

Registered: 10/21/13
Posts: 2
Well, that is one of the issues. In Germany Pharmacies still mix and prepare medications, so this lotion is made and that is apparently not common at all in the US.

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#29040 - 10/26/13 10:10 PM Re: I need help [Re: Eva Ludwig]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
It looks like some sort of base cream like either Aquaphor or a cream base like Velvachol, with 1% urea and 1% distilled water and 10% of whatever Creme Bayer is (antifungal?). Silicoderm-F is a 35g tube of silicone lubricant. You'd probably do okay with glycerin or some sort of oil like coconut oil.

Locally, a lot of people use CeraVe as a good OTC cream. It is supposed to restore the ceramide oils in your skin and is supposed to work really well on LI and CIE. You can also see a doctor and request samples, or a letter to get into the Beiersdorf program. They will send you a case of cream every 3 months. They offer Aquaphor, Eucerin, Eucerin Plus, Calming Creme and Nivea products. Details are at the top of the first forum.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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