Yeah, she contacted me, too. She found my blog after seeing the thing on Huffington Post about the Chinese kid with lamellar last week. I told her I would be glad to do an interview (as I'm safely on the other side of the planet!), but she wanted locals. Kanga tells me it's more of a tabloid than a news network, so I can't say I blame you for being wary.
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"