If you contacted them on Friday, they aren't in the office, so I'd expect to hear back next week.
Are you seeing Erin Mathes? She's awesome.
Catch me over on Facebook, too. I can hook you up directly. Here's her blog. (She's in LA, I think) jradandjess.blogspot.com
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"