Topic Options
#28870 - 03/25/13 08:42 PM Please help my 4 year old son...
Mus Offline
New member

Registered: 03/25/13
Posts: 3
Hi there,
I am new to this forum but I have read a lot of posts, it is very interesting!
I live in the Netherlands and we do have (almost) 4 year old son. He is diagnosed with IV and all I receive over here from the doctors are really fatty creames. They do not help at all.
My little boy has it on his heals and on his shin legs. But his body overall is extremely dry. The first peels and marks are now appearing on his shin legs.
I would like to know what any of you can recomment me to use before it is getting worse.
So ALL tips are very welcome!!!
Thank you all in advance for your kind assistance.



Top
#28873 - 03/26/13 10:21 PM Re: Please help my 4 year old son... [Re: Mus]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Hi! Have you tried any creams with lactic acid or urea or glycolic acid or salicylic acid in them? Those seem to be really helpful for people with IV and XLI. The fatty creams do a good job of moisturizing, but the acid creams work to make the scale slough off.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

Top
#28874 - 03/27/13 12:08 PM Re: Please help my 4 year old son... [Re: Hearsay]
Mus Offline
New member

Registered: 03/25/13
Posts: 3
Hi!
Thanks so much for your reply.
I have not tried it, and I am not familiair with them. The problem is that in the Netherlands you cannot get a lot of these cremes. Do you perhaps have any names of cremes that I can look for?

Thank you so much!!
All info is much welcome, I want the best for my little boy

Top
#28875 - 03/27/13 02:59 PM Re: Please help my 4 year old son... [Re: Mus]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Here in the US there are creams called Amlactin and Aqua Glycolic. There's also one called Lac-Hydrin that has been out for years and is available in generic. It is 12% lactic acid in cream. Your pharmacy should be able to compound acid cream for you as well, so if you can't find a commercial product, perhaps try having the pharmacist mix up a 12% lactic or 6% salicylic or 30% urea type cream. They can put it in whatever creams you already use, or a base like Velvachol.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

Top
#28876 - 03/30/13 09:48 AM Re: Please help my 4 year old son... [Re: Hearsay]
Mus Offline
New member

Registered: 03/25/13
Posts: 3
Thanks a lot, I will try and search the web a little bit, and indeed a good idea to have the pharmacist mix it up!
Many thanks!!

Top

Moderator:  marcsmom, Sideshow_bob 

Copyright 2012 Ichthyosis Information