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#28864 - 03/22/13 10:19 AM Australia
carmen carmen Offline
Member

Registered: 11/24/12
Posts: 8
Is anybody here from Australia? I am from QLD Australia and my son has Lamellar Ichthyosis.

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#28867 - 03/24/13 02:04 PM Re: Australia [Re: carmen carmen]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Hello! I know several Australians. This site has gotten very quiet lately due to everyone chatting on Facebook nowadays. Check out carlyfindlay.blogspot.com Carly is in Melbourne.

I know an adult in Brisbane with LI, and I'd be happy to put you in touch.

_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#28871 - 03/26/13 10:38 AM Re: Australia [Re: Hearsay]
carmen carmen Offline
Member

Registered: 11/24/12
Posts: 8
I would love to get intouch with someone from Brisbane, that would be great.

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#28872 - 03/26/13 10:19 PM Re: Australia [Re: carmen carmen]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Check your private messages.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#28902 - 04/27/13 06:33 AM Re: Australia [Re: carmen carmen]
sophiesmum Offline
Member

Registered: 12/11/08
Posts: 24
Loc: Coffs Harbour Australia
Hi there, we have a four year old daughter, Sophie, who suffers from Lamellar Ichthyosis. We live in Bellingen (Coffs Harbour area). Happy to chat anytime smile
_________________________
My name is Cathy and my daughter Sophie 4 years has Lamellar Ichthyosis

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#28903 - 04/27/13 12:52 PM Re: Australia [Re: sophiesmum]
carmen carmen Offline
Member

Registered: 11/24/12
Posts: 8
Hi Cathy we are from Brisbane have you found a nice doctor?


Edited by carmen carmen (04/27/13 12:53 PM)

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#28909 - 04/30/13 12:19 PM Re: Australia [Re: carmen carmen]
sophiesmum Offline
Member

Registered: 12/11/08
Posts: 24
Loc: Coffs Harbour Australia
We were seeing a great Dermatologist in Sydney, Dr Gayle Fischer, but the trip was getting a bit much. We have a good Derm now in Port Macquarie, Dr Hamman, though we haven't seen him lately as we haven't had anything major to worry about. My email is clm1982@hotmail.com if you would like to share any tips?
_________________________
My name is Cathy and my daughter Sophie 4 years has Lamellar Ichthyosis

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