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#28840 - 03/02/13 10:33 PM Fever with Lamellar
TMPOL Offline

Registered: 07/30/08
Posts: 44
Loc: Collingwood, Ontario, Canada
I have a question about how you handle a fever with Lamellar. We don't like using medications. Typically we will put our son in a cool bath to bring his core temp down. I worry about him over heating still and would like to know what others do.

Most appreciate and blessings.

Tara, Rene and Myles
Myles born May 22nd 2007
Lamellar Ichthyosis

#28841 - 03/03/13 07:27 AM Re: Fever with Lamellar [Re: TMPOL]
Hearsay Offline


Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Cool baths and lots of fluids have been the way to handle it for us. We also do the alternating ibuprofen and acetominophen routine if it's a really high fever. For low fever, we just ride it out unless they have other reasons to need medication. But twice, it got so bad that we had to go to the hospital for IV fluids. My oldest was 2 and hit 105F after tylenol, and my youngest at about 18mo stayed right at 104 after ibuprofen AND tylenol and both were showing signs of heat exhaustion, so off we went.
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.

email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"


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